Date(s) - 03/19/2020
Time: - 9:00 am - 2:00 pm
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Last year our Piecemakers quilters joined forces with RARE Science, Inc., a non-profit organization that helps find cures for kids with rare dis-eases, and made 50 one of a kind bears for special one of a kind kids. Gifted RARE bears have a serial number specifically made for a child in our program. There are millions of children with rare diseases. Since these diseases are not normally the focus, these children are often misdiagnosed and/or do not have medicines available for them. 30% of these children die before their 5th birthday. RARE Science believes and have already demonstrated that by empowering Parents and Foundations with tools to navigate the healthcare system, build patient communities and clinical/research teams focused on these diseases, we can accelerate finding more immediate treatments.
The philosophy at RARE Science is that alone we all can make great contributions to our community but together we can make transformative change! Although all the bears will be made to specified guidelines and pattern, it is the contribution of each team members stash” and donations that make each bear unique. Be a part of the RARE Bear Army!
Please join our Piecemakers quilters at our Rare Bear Sew-in on March 19, 2020, at NSUMC from 9:00 am – 2:00 pm. Patterns will be provided. Please register with Rare Science for your personalized serial number and material for their feet at:https://www.rarescience.org/rarebear –
Contact Vickie Johnson via email to RSVP for this event at firstname.lastname@example.org.
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